What Life is like with a Severe Disability

Have you ever said to yourself I wonder what it would be like to live life with a severe disability? I'm sure you answered yourself I can't imagine. As I'm sitting here writing this I wish I could say the same. I was diagnosed with Dubowitz congenital muscular dystrophy around the age of three. From the time I was born my mother says she knew something was wrong but it wasn't until I was brought home and had to be rushed back to the hospital shortly after, that anybody knew for sure. Throughout my infancy I was prone to stop breathing for no reason at all and was so weak that I had trouble closing my eyelids to sleep. Doctors told my parents not to let me cry if at all possible for fear I wouldn't be able to be resuscitated.

As I got older my health improved to the point where I wouldn't stop breathing for no reason at all and at the stage where children are usually pulling up on stuff and learning to walk I was still learning to sit up by myself. Still even when I could sit up by myself the least little thing could knock me off balance. My lack of balance led to several concussions which ultimately led to minor brain damage. The only side effect were the migraines.

Still with all of the problems I had I never really felt different and I guess I owe a lot to my family and friends for that. Even though I wasn't able to walk I learned to use my legs to push me around and scoot across the floor moving backwards.