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How Losing My Large Intestine Changed My Life

You Can Live Without a Large Intestine

By R. Geary, published Feb 20, 2007
Published Content: 14  Total Views: 17,544  Favorited By: 34 CPs
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I have no large intestine. A statement that garners attention. I like attention. That statement didn't necessarily always elicit the type of attention I desired though. My modest Catholic upbringing made bodily functions difficult for me to talk about.

My large intestine burst on July 19, 1999. I rode in a cab to Faulkner Hospital in Jamaica Plains on July 16th, 1999. I had moved to Jamaica Plains on May 5th, 1999. I didn't know many people in town. I asked the cab driver to take me to the nearest hospital. Something they say in the movies. He said, "E.R.?" I said, "Yes," and wondered how he knew.

I couldn't stop going to the bathroom. My abdomen was distended. I was in pain. A knife in the stomach kind of pain. What I saw in the toilet looked like pink mucus. As I pressed my feverish head on the cool toilet seat, tired and unable to eat, I imagined wispy, pink jellyfish swirling down the drain.

I had an undiagnosed case of ulcerative colitis. I had no health insurance. I was 26 and still thought I was immortal. I thought my stomach problems would go away. I was living in Boston after getting out of a dangerous relationship in New York City and thought stress or bad living had taken there toll, but I would get better, right? Little did I know that my large intestine was literally becoming mush as I put off my visit to the hospital.

The doctors didn't know what was wrong with me for the first days. They ran tests. Asked me confusing questions. Confusing because I didn't know why they cared if I ate anything in the past hours, or if I was pregnant. Confusing because I didn't know how one answered questions that boiled down to, "We are going to put a camera up your ass, okay?" "Umm, well. Okay." Confusing because my body was slowly becoming toxic. Toxic Mega-Colon the doctors called it. That sounded remote, implausible, like an imaginary comic book superhero. Unfortunately, it was real.

How Losing My Large Intestine Changed My Life

Large intestine highlighted

Credit: Calnet

Copyright: Calnet

Takeaways
  • you can live without your large intestine
  • a j-pouch is a reconstructed small intestine
  • acknowledge pain
Did You Know?
Avoid going to the hospital in July. New residents begin their rotations in July.
Comments
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wow, the same exact thing happened to me. I"m sixteen, & when i went in for my second surgery to remove the bag, it was successfull, so i didn't have to do it in two parts. its hard thinking that there are other people out there that have gone through what i have, even worse. i feel so out of place around people at school now, but i know i'll get through it.

Posted on 06/03/2008 at 3:06:40 PM

 
Wow that is a scary story thats good your ok!

Posted on 05/22/2008 at 9:05:26 PM

 
What a scary situation, I'm glad you are doing well, thanks for sharing :) Sheri

Posted on 05/16/2008 at 8:05:32 PM

 
I have been reading all I can about the large and small intestine. The doctors finally found out that my large intestine has to come out because it is dead. My system is reversed. It takes me hours of cramping and bleeding to finally have a bowel movement. I go maybe if I am lucky once a month or longer. My body doesn't tell me I have to go until it is so bad that I can't stand it. I have changed my diet up alot. I am allergic to milk products and to pork, steak. I eat alot of chicken and eat soups. My body has rejected all laxatives. I stay sick all the time. I finally got the call today that my surgery is April 2. I'm nervous but have alot of faith in my surgeon that he will do a great job. Glad to hear that all is doing good. I pray for all a speedy recovery. You are in my prayers. Thanks for your time.

Posted on 03/10/2008 at 3:03:35 PM

 
Hi, Thanks for writing your story....it has helped me understand what i went through, 2 years ago, this june. They also failed to diagnose me, even though i had all the symptoms. I was rushed to hospital, had emergency surgery........it was touch and go for a while, and i was in I.C.U for 5 weeks, then onto a ward for 4 weeks. I had to have an illostomy, which at the time was my worst nightmare. They still don`t knowif i have Crohns or not, as i was an indeterminate case, so i`m currently undergoing tests, as i can`t have the pouch if it is Crohns, so i`ll be stuck as i am. I try to keep upbeat about it, although if it wasn`t for my friends and family......i wouldn`t have wanted to go on at the time it happened.. I thought that having a heart attack 3 years ago, was the worst thing that would happen to me........boy!, was i ever wrong. Please feel free to contact me : memphis.56@sky.com , i live in England have would be more than happy to help anyone through the difficult times. Than

Posted on 02/21/2008 at 10:02:53 AM

 
I had this surgery when I was ten/eleven (first surgery when I was ten, second when I was eleven), and for everyone out there, I am going to be thirty one at the end of February. I know my mother feels the same way as you did about the diagnosis (I was four), and annoyed that it took so long and really at the end it was still, it appears to be ulcerative colitis. Luckily, that is what it was and I am fine now, I can't really drink (alcohol) more than a glass a wine without feeling like a have a hangover (I dehydrate easily) and oddly, I eat healthily, but I can't have fruit be the first thing that goes into my stomach in the morning otherwise I cramp until the whole fruit makes its journey into my small intestine. But, big whoop. A general question though, has anyone ever heard of an hyper immune system contributing to this disease, I have recently and I just don't ever get sick (I have had one or two head colds in the past five years)

Posted on 01/30/2008 at 11:01:03 AM

 
I had my colon removed at age 17 and have an older version of what you have but I have to insert a catheter to empty waste. It was horrible when it was happening but I have two wonderful kids and my husband is my rock. Hang in there, I have felt your pain. Oh and I still eat popcorn just not the small kernels that did not pop.

Posted on 01/11/2008 at 1:01:53 PM

 
My aunt just had an ostomy bag put in; she had to have her entire large intestine removed. It has been a scary and crazy time (she has other health issues as well). I am happy for you that you are doing so well now. Good luck with everything!!!

Posted on 11/26/2007 at 7:11:00 AM

 
how does it affect you

Posted on 04/20/2007 at 1:04:00 PM

 
Wow! This was a very interesting article. I am glad your fine.

Posted on 04/08/2007 at 10:04:00 AM

 
My goodness...how terrible. Thanks for sharing this incredible story with us !

Posted on 04/06/2007 at 10:04:00 PM

 
26 Wow...yes the imortal age. Keep up your efforts.

Posted on 03/29/2007 at 4:03:00 PM

 
Wow, very interesting, great article

Posted on 03/18/2007 at 2:03:00 AM

 
This sounds awful. I'm sorry you have to go through this.

Posted on 03/14/2007 at 12:03:00 PM

 
Great Article, you kept me hooked through the whole thing!

Posted on 03/13/2007 at 9:03:00 PM

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