Multiple Sclerosis - More Pieces to the Puzzle Are Emerging
An Online Guide to Understanding MS
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Multiple Sclerosis (MS) is a frustrating disease not only because those who have it are ill, but because the symptoms vary substantially and can change quickly. Symptoms are often exacerbated by heat. However, thanks to the dedication of many individuals, organizations, and pharmaceutical companies, today there are treatments rather than just medications to minimize symptoms.There is hope. There are also many web sites devoted exclusively to living with MS and helping families manage the illness for the person who lives with it and those who assist them.
The site of the National Multiple Sclerosis Society (NMSS) has particularly good material for those recently diagnosed with the illness. It also has extensive information on research, clinical trials, and new drugs. Only 15 years ago, there were few medications to impede the progress of MS. The Society's Professional Resource Center houses the most comprehensive library of MS information in the world, and the site provides links to a number of the materials for healthcare professionals. While anyone can view this material, much of it is more technical than the very readable articles elsewhere on the site.
The NMSS has a series of chapters throughout the nation. They organize support groups, hold fundraising activities, and help persons with MS get the information they need to manage their illness. The site has links to the chapters.
http://www.nationalmssociety.org/
MSActiveSource.com provides everything from basic facts about multiple sclerosis to in-depth MS treatment information. The broad focus is on living well with MS. The site is updated often with news about research and articles about living an active life while managing MS. Experts answer common questions about MS symptoms. Those with MS can be connected with an MS mentor, and those who serve as caregivers for an MS person can also learn about support system. The "Caregivers Corner" has an extensive section on parenting a child who has MS, something not written about much on other web sites or in magazines.
http://www.msactivesource.com/msavProject/msas.portal?bioc=gadwgeninfo
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Takeaways
- Heat affects MS symptoms, but NASA technology has created good personal cooling gear.
- Most sites describe the many drug treatments available -- options not possible even 15 years ago.
- The site of the MS Foundation is most geared to those who want to interact online.
Did You Know?
Because more children are being diagnosed with MS, several web sites have advice for parents.
Resources
- The web sites in this article provide suberb information. Each year there are more books about living with MS, many very good. However, given the continually growing knowledge about the illness, the web may be your best bet for current information.
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Jay Wilson
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Posted on 05/04/2007 at 11:05:00 AM