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Multiple Sclerosis Patients Should Be Tested for Lyme Disease

One is Often Misdiagnosed as the Other

By K. Cauldwell, published Jan 09, 2006
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It’s become a far too common experience. People presenting with all the symptoms of Multiple Sclerosis, getting the diagnosis (more often than not the official diagnosis they receive is “probable MS”), and undergoing treatment are not finding any improvement of their symptoms. Some notice that with the injections many MS patients take daily, their symptoms had, in fact, worsened considerably. The experience is frustrating and painful, both emotionally and physically. Why is this happening? And why so frequently?

If this is the case with you or someone you know, I strongly encourage the patient with MS or probable MS to call their primary care physician’s office and request a test for Lyme Disease. There are several types out there, and some can throw false negatives, so if you are tested and the results come back negative, you have nothing to lose by requesting another test using a different method. At this point, you’re most likely already in pain and are definitely spending more time with your doctor than you ever imagined possible, so what have you got to lose.

Because both Multiple Sclerosis and Lyme Disease are diseases of the central nervous system, they both manifest themselves in ways that are different person to person. Multiple Sclerosis is caused by lesions, sometimes called plaques, that appear on the brain and spinal cord. Lyme Disease is caused by introduction of the BB virus into the body by the bite of a deer tick. This virus attacks the same areas as the lesions of MS. The deer tick is smaller than the dog tick, and as the symptoms come on slowly and progress over a period years, so many patients either don’t know or don’t remember that they were ever bitten.

Takeaways
  • MS and Lyme disease are very similar in presentation.
  • Diseases of the central nervous system are often hard to diagnose.
  • The symptoms experienced by people with diseases of the central nervous system are vastly different.
Did You Know?
Many Lyme Disease patients don't know they've been bit by a tick. The deer tick, which carries Lyme Disease, is far smaller than the dog tick, and can often drop off unnoticed.
Comments
Showing Comments 1 - 7 of 7
 
 
Interesting findings!

Posted on 06/11/2008 at 6:06:40 PM

 
I am one of 2 patients my PCP referred to neurologists last year. I was one lesion short of a diagnosis for MS and told to wait for the second lesion. The other patient was diagnosed with progressive MS. I told the neurologist I thought I had Lyme, but he said it's not here. Thanks to the incompetent Kansas health dept., doctors believe that, but it is in the eastern 1/3 of Kansas. I got to a LLMD (Lyme literate) and am improving. The other patient also got into another LLMD months after his diagnosis and told my PCP that the LLMD saved his life. After 30 days on levaquin and Zithromax, he knew he wasn't headed for a wheel chair. The neurologist does spinal taps and can't be looking for spirochetes or antibodies, but Lyme should never be eliminated on an ELISA. A Western Blot and an LLMD who can read it are the key. My WB's were from Specialty Labs and Stony Brook. As long as the spirochete DNA (41) and another protein antibody are present, that should be sufficient for anti

Posted on 06/03/2008 at 6:06:11 AM

 
Great article !! - I was just scanning to see what had been written on Lyme here. Curiously, in the late 1800s /early 1900s MS was thought to be caused by a spirochete - (same as Lyme) then the studies were trashed. Whether it was really Lyme disease or the researcher was on to something who knows - but the diseases can present identically, for sure. Thanks again.

Posted on 07/17/2007 at 9:07:00 AM

 
My sister and I have been suffering for years from undiagnosed chronic pain. We have a mother who was diagnosed years before that, with MS. After having several tell me that my symptoms sounded like Lyme, I've found myself an LLMD who is going to give me a proper test thru the IGeneX lab. I've also told my mom (and sister) that they should get one done, as well. Hearing how many people were misdiagnosed with MS is really amazing!!

Posted on 03/31/2007 at 12:03:00 PM

 
I've been tested twice and the results were negative. But I hear the tests are not accurate. People that have this disease tell me it mimics the symptoms of MS and other neurological illnesses. I have heard that nine out of ten people that have Lyme disease don't even know they have it.

Posted on 11/24/2006 at 3:11:00 PM

 
As stated in this article. The tests are incredibly unreliable. Ask your doctor to be tested at Igenex lab in California and ask for the ELISA, Western Blots and PCR tests. Do not except any other lab - they are all unreliable. I believe many M.S cases are actually undiagnosed Chronic Lyme disease.

Posted on 11/05/2006 at 11:11:00 AM

 
As a MS recipient, I thank you. I have often wondered if their diagnosis was correct; there is a weeky shot available now, but the medication and I didn't get along. And I just happen to have friends who have hunted deer, I'm not a hunter myself, but have participated in their hobby, and have lived in the country on various occasions. So, you never know...

Posted on 10/30/2006 at 6:10:00 AM

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