A Day in the Life of Lupus

I have been living with lupus now for over two years. Every day since has been a struggle as just the simple tasks of getting up and out of bed are often a lot to deal with. This is a behind the scenes look; an up close and personal view of what a day in the life of someone with lupus is like. I'm hoping that this will help people see what it's like to live with a chronic illness.

I'm going to start my day from the night before, as often my nights are a direct result as to why my days are so hard.

8pm - Often by this time I'm feeling utterly exhausted. I am extremely fatigued all day but by this time I find that it's just getting to be too much and I desperately need to lie down.

9pm- I find that by this time as I'm lying down and resting my muscles seem not to be to impressed with my sudden urge to relax so they begin to tighten. Have you ever had a fever? You know that sensation of your entire body feeling really achy? Well that's sort of how it feels but imagine now muscle spasms on and off. Sometimes they aren't bad and just more annoying then anything, other times they are painful and bring me to tears. I have pills that can and sometimes do help but with the help come nausea and dizziness. I also know that if I were to take these pills for my muscles the drowsiness would last into the next day making me feel as though I had been up all night drinking. I also have to deal with bad chills and cold hands and feet. This has nothing to do with the climate of the house as it's due to my anaemia and possible raynauds syndrome. The solution is a heating pad and layers.

So Lets say I decide to take the pills for my muscles.