Ten Tips for Caregivers to Stroke Survivors

If Your Loved One Had a Stroke You Need This Information

According to the American Stroke Association 5,700,000 stroke survivors are alive in the United States. Strokes, they say, are the leading cause of long-term disability. If your loved one just had a stroke, you (or another relative) will face the scary prospect of becoming a new caregiver
 as soon as your survivor is released from the hospital or stroke rehab center. It will be a long road filled with small and large disappointments, tiny and great rewards.

At times you will feel helpless and inept. At other times you will feel like you are your loved one's greatest warrior in a world where you have to fight for therapies, information, understanding, help, payments from the insurance companies, and time to get everything done that needs doing. These are all normal experiences and feelings. Adapting the ten tips below can help you cope and become a more effective caregiver.

(1) Keep good records. Set up a notebook with sections to:
a) Document all your phone calls to doctors, therapists, hospitals, and pharmacies.
b) Document all applications and contacts with places like Social Security Disability, the Veteran Administrations, insurance companies, banks, pension administrations, etc.
c) Document out-patient or home therapies and your loved one's progress and moods
e) Keep a record of all appointments
f) Keep contact information for doctors, hospitals, therapists, pharmacies, facilities, agencies, community and internet resources, etc.
g) Keep notes of all medications given and the effects you see in your loved one when changes are made

(2) All strokes are different depending on the location in the brain and the size of the clot or bleed. All stroke survivors are different depending on their determination, age and inner resources. Research your care recipient's type of stroke. Know what part of the brain was damaged and what that part of the brain controls. The more you know about strokes the better you'll be able to react appropriately to the changes you'll see in your loved one and to become a better caregiver.

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this is very well written and I would like to link with it from my blog. I am a stroke survivor and my wife - with some very inadequate assistance - is my main caregiver. thank you Dalip http://dlip.wordpress.com

Posted on 01/10/2009 at 9:01:00 PM

Please check out my 'Aphasia and Stroke Caregivers Guide' at: http://www.squidoo.com/strokecaregiver

Posted on 04/20/2008 at 10:04:40 AM

Check out my blog at: http://fromtheplanetaphasia.blogspot.com/

Posted on 10/09/2007 at 3:10:00 PM

This article makes me realize how fortunate I am that both my grandparents that had strokes are doing fine. My grandpa is back riding and training horses (with a little gimp of course), and my grandma (now has a little trouble speaking), but now all of a sudden she's an AMAZING painter, and she never painted before. Any explanation for this?

Posted on 05/30/2007 at 5:05:00 PM

Jean: I want you to add tranportation services are avilable through redcross and your county to take patients to medical appointments, I know it had come very handy for us, since we still needed to keep caregiver's job intact.

Posted on 05/15/2007 at 6:05:00 AM

Really excelent advice. I especially like the idea of handing a to-do list to people who ask how they can help.

Posted on 04/21/2007 at 9:04:00 AM

These are good! Having had a few small strokes, I think I'll pass them on to my daughter, just in case.

Posted on 04/19/2007 at 3:04:00 PM

I think that each of your points can now be developed into individual articles or chapters of a book. With your years of experience, compassion and sense of humor - you truly hold the hand of every caregiver that receives your words. You are an inspiration to those of us who deal with a loved one who has stroked.

Posted on 04/14/2007 at 5:04:00 PM

This is worthy of print- do you query magazines? If you're not sending out queries, please start doing so.

Posted on 04/14/2007 at 2:04:00 PM

Excellent advice, and very well written. :)

Posted on 04/14/2007 at 1:04:00 PM

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