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Some Days I Want to Stay in Bed : Life with Autism

Life with Autism

By Dacia J.Medina, published Apr 18, 2007
Published Content: 18  Total Views: 6,686  Favorited By: 7 CPs
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Autism is a Brain Disorder that currently affects one in one hundred and fifty children in the United States. This Brain Disorder is more common than childhood cancer, diabetes and AIDS combined. It can occur in all ethnic and social backgrounds. Autism affects a child's ability to communicate and relate to others. Symptoms can vary in range from mild, or as they call it "High Functioning", to severe. My daughter was diagnosed about a year ago with Asperger's.

It's Tuesday morning, I go in and kiss my daughter and get ready to get her up for school. She opens her eyes, looks at me and rolls over and pulls the blankets up over her head. She yells, "No, I'm not getting up. I'm tired." I think to myself, "Is this going to be one of those days"? Sure enough it started out that way. Since we have about an hour before she needs to be at school, I get her dressed, get her breakfast; let her watch her favorite morning cartoons. Then she asks me about a pencil. She wants just any ordinary pencil. Then the meltdown begins. It just depends on what she is going through on that particular morning. But today it was"The Pencil". I knew we were getting ready for a major one, so I run around the house looking for that certain pencil. I don't find it; I give up because at this point nothing is going to make her happy. I grab her backpack and I head out the door. I can hear her in her bedroom, throwing herself down, screaming and crying. At this point she has no idea what she is even crying for.

I stand outside on my patio, close the door and sit on a patio chair. I know what needs to be done because we go through the same ritual day after day. I take a couple of deep breaths, and I go back inside. I grab my daughter and pick her up. She weighs more than 50 pounds. Imagine this...it's about 7:45 A.M. I'm carrying my seven year old daughter over my shoulder; I have her backpack in my hand, left my purse on the patio. She is screaming and fighting, all for a stupid pencil.

Some Days I Want to Stay in Bed : Life with Autism

Family dealing with Autism

Credit: Dacia Medina

Copyright: Dacia Medina

Takeaways
  • Autism affects one in one hundred and fifty children.
  • Living with Autism sometimes just plain sucks.
Comments
Showing Comments 1 - 15 of 15
 
 
Dacia. I see the pain and confusion in your and your daughter's eyes. My heart goes out to you...See my article about the Boy on the Boat and how we want to help but don't. .A cure must be found. The glimse into your daily struggles is heartbreaking.

Posted on 05/03/2008 at 10:05:15 AM

 
As the mother of two boys on the spectrum, I feel for you. We all have these days. I promise, it DOES get better.

Posted on 12/07/2007 at 11:12:00 PM

 
My oldest brother is autistic, so I know there were times we found it hard to cope. Sophie

Posted on 07/25/2007 at 4:07:00 PM

 
Kudos to you..... I have six kids, and I could not imagine if one of them had autism. It's hard enough when they don't.. try and keep good spirits :-)

Posted on 06/08/2007 at 8:06:00 AM

 
This is exactly how my PDD/NOS son behaved a year or two ago -- and we called it a meltdown too! The solution we found - I gave him a blanket to cover his head with so he could cut off all stimulation from outside. It became a sort of ritual, and ritual always helps autistic kids. After a little while, he'd be ready to come out. We also took his cool name Hunter away when he acted like that, and gave him the not-cool name Zelbert; until he tried to calm down and regain control, he was not allowed to have his name back! It's a long long path and really takes a lot of patience -- few who don't have children like this understand how hard it really is.

Posted on 05/04/2007 at 10:05:00 PM

 
Been there and I know exactly what you're talking about. It is a very difficult life. I would never understand it if I didn't live it. It does get better, but it still overwhelms. It is a very difficult life I understand exactly how you feel. It's a very difficult life. It will get a little better but the overwhelming feeling of not being able to help your child at these moments takes a toll on the soul.

Posted on 05/04/2007 at 10:05:00 PM

 
You must be a truly amazing person. My hat is off to you and your family.

Posted on 04/25/2007 at 5:04:00 PM

 
Some days I know you want to stay in bed. I know Morgan and I don;t blame you, lol. Good article.

Posted on 04/23/2007 at 12:04:00 AM

 
Fantastic article. It takes strength to be a parent in general, let alone the parent of a child with special needs. Stay strong and stay YOU! Don't lose yourself in the fight! Summer

Posted on 04/22/2007 at 11:04:00 AM

 
Thank you all so much for the wonderful comments, this was the very first thing I wrote and submitted to A.C. For me it is important to get the word out there and let people know what autism is like. Thanks for reading Dacia-

Posted on 04/21/2007 at 4:04:00 PM

 
Makes parenting twice as hard; hope you can find some help, such as with a support group.

Posted on 04/21/2007 at 3:04:00 PM

 
I really liked the article Dacia. It's a refreshing change of pace to hear about this disorder from a new perspective.

Posted on 04/21/2007 at 9:04:00 AM

 
It must be a difficult time that requires a lot of patience. I often dont want to get out of bed either, but in my case, it is just laziness.

Posted on 04/21/2007 at 2:04:00 AM

 
Thanks jack for the comment, it really does take a lot of courage,but we are strong and all I can do is raise,"Autism Awareness" and just let other families know that they are not alone.

Posted on 04/19/2007 at 2:04:00 AM

 
An interesting look at what families affected by this have to deal with. It takes a lot of courage to keep going under these conditions.

Posted on 04/18/2007 at 11:04:00 PM

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