What Not to Say to the Parent of a Child with Cancer

By Shannon Barry, published Apr 26, 2007
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My son was diagnosed with brain cancer in April 2006, just a month after his tenth birthday. Even though he was flown from San Antonio to Houston, TX - to MD Anderson Cancer Center no less - it took me a couple of days to get it through my head that my child had cancer. I kept thinking, "It's going to be a benign
'growth' . . . nothing malignant." Seriously, how could my perfectly healthy son have cancer, right?

Wrong. Keeghan's tumor was malignant. But after two surgeries, six weeks of radiation, and a year (so far) of chemotherapy, he is tumor free. It will be my daily - hourly? - wish, for the rest of my life, that he stays that way.

One of the hardest things to deal with when your child has cancer is the way in which other people react when you tell them, and the things that they say. It has been proven to me time after time that most people really don't think before they open their mouths. They'll say things like, "Oh, I knew someone that had the "c" word. She died."

The "c" word. I've heard cancer referred to that way numerous times, as though actually saying it would cause a person to get it. It's not contagious people!

At the grocery store one day, with Keeghan standing by my side, the cashier asks me, "Did he have an accident?"

Keeghan has a very large scar on the side of his head. It's a nice scar as far as scars go. It's perfectly symmetrical - four inches up on one side, five inches across, and another four inches down on the other side. It's so perfect that my husband used to joke and say that it looked like a trap door. He'd tease Keeghan by telling people that that was where he kept his wallet.

So to be asked if he had an accident seemed pretty ludicrous. "Yes, he fell out of a tree and landed on a cookie cutter. Hence the perfect scar."

I wish I had replied that way, but alas, I didn't. "He had a brain tumor," I say instead.

"Oh . . . is he going to be okay?" she then whispers.

Takeaways
  • The first thing that comes to mind may not be the right thing to say out loud.
Comments
Showing Comments 1 - 6 of 6
 
 
Hi Mrs. Shannon Barry! I thank you for your article. You see I am a male Nurse and during the time when I was still a student intern in a certain Hospital I was able to take care of infants and very young children with cancer. I even included them in an article I have made here in AC. I learned in theory all about Therapeutic Communication, but its a lot harder to do when confronted in a real situation. Your article made me understand better on how to talk with parents more effectively, usually all I can do is to remain silent if I could not figure out what better things to say rather than speak without thinking first. Though silence is a good way avoid hurting feelings, it would be much better if one knows what to say in the most important time that parents or patients need to be reassured and comforted without compromise to the reality of the situation. God bless!

Posted on 05/06/2008 at 11:05:48 AM

 
I agree mrs. B... I remeber not even telling people that I had cancer when I was little cause they always would act like that. Praying for you guys :) cya monday -- Laura

Posted on 04/30/2007 at 6:04:00 PM

 
I truly enjoyed it. I am quite often "Guility" as the people you talked about (as you know). Sorry. Keep up the good work.

Posted on 04/27/2007 at 10:04:00 AM

 
TreeLuvr87: This is a great article, you really got your point across well in. If only we could say those thing to make people stop in their tracks and realize how rediculously stupid they sound. Thanks for putting this together.

Posted on 04/27/2007 at 10:04:00 AM

 
Moral...Think before speaking! Great words wisdom!

Posted on 04/27/2007 at 5:04:00 AM

 
very insightful article. thanks for writing!

Posted on 04/26/2007 at 11:04:00 AM

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