Debating an Autism Cure

Is it My Job as a Mom to Find It?

By Stephanie C, published Apr 30, 2007
Published Content: 10  Total Views: 1,447  Favorited By: 3 CPs
Rating: 3.6 of 5
My son was diagnosed with Autism, just after he turned three years old. Having a cousin also on the spectrum, I knew the signs. Ok, so what was the next step? Therapy, medical testing, special diet? What was I supposed to do now?!

The psychologist who diagnosed my son, was kind enough to give me a list of "recommendations", for what I should consider next, as a parent. Of course I should send a copy of the diagnosis to his Pediatrician. Let's not forget continue with therapy, and get more if necessary. This would mean applying for a service coordinator with the county, and apply for funding (and respite care, if needed) as well. There were SO many things to consider, and I felt truly helpless. I joked to her "Is there an "Autism 'Post-Diagnosis' For Dummies" book out there? Suddenly, I felt completely ignorant as a parent!

I remember setting up an appointment with Children's Hospital, at their Autism clinic. My son met with a Developmental/Behavioral Pediatrician, who watched him play as she asked questions about his development. She sent us to a lab, where they drew 6 vials of blood.. Imagine a 3 year old child with no clue to what was happening, desperately squirming and screaming to get away.

My husband and I have pondered the Gluten/Casein free diets. We have heard that many children with Autism have a great response to it, in terms of gut and behavioral issues, and even with speech. There is so much junk in what humans typically eat, that our whole family decided to try it- despite the fact his test results showed no real reason to be "gluten (or casein) free". We have also given thought to supplements and the like, however just putting my son on regular chewable vitamins has caused behavioral issues at school.

I called the county for a service coordinator, to get my little guy set up with respite care, should the need for child care ever arise. We have signed up for the waivers, the family support funding, and so on. Through them, my son is now receiving both Speech and Occupational Therapy once a week, aside from what he already gets in his special needs preschool.

Debating an Autism Cure

Autism, child

Credit: Mark A. Hicks

Copyright: http://school.discovery.com/

Takeaways
  • I'm not asking for other parents to judge me because of the way I choose to raise my children.
  • When I think that what I'm doing is no longer the best for my son, I'll change plans accordingly.
Did You Know?
"There is no cure for autism; however, with appropriate treatment and education, many children with the disorder can learn and develop."
Comments
Showing Comments 1 - 7 of 7
 
 
I'm in the central Ohio region too! I relived my several hour long ordeal at Children's Hospital while reading about your experience. The GF-CF diet never went over that well for us either. It didn't seem to help when we were on it anyway. I definitely agree that each family's situation is their own to deal with. I've met parents who try to equate not trying a therapy to child neglect! Autism or not, we still have to live our lives. Thanks for the great article!

Posted on 10/10/2007 at 10:10:00 PM

 
Thanks for sharing

Posted on 09/16/2007 at 3:09:00 PM

 
Great article. Sounds like you have a handle on how your children should be raised. I wouldn't worry so much about what others are doing. Just keep loving those kids.

Posted on 09/08/2007 at 11:09:00 AM

 
I totally feel you. We finally have a diagnosis for Joseph (Disruptive Behavioral Disorder NOS). And what are we doing? The same as we have been. Basically, I'm not out to CURE him, I just want him to be able to read and get along with others at this point. I don't understand why that's wrong! I do not have multiple initials and dots after my name. I'm his mom.

Posted on 05/16/2007 at 4:05:00 PM

 
I agree with you 100%! My son already knows he's different, but mounds of therapy will only cause him to be that much uncomfortable because he knows that other kids don't go to therapy. He doesn't want a cure for autism and has said that if there ever is one he won't take it. He believes Asperger's syndrome is what makes him unique, good at games, and...well, Sean. I hugged him for that! He is more grown up about his diagnosis than most parents are. You keep doing what you feel is right for your son. Autistic or not, he still learns how to behave from his family and therapy can only do so much for him. We don't use the gluten free diet - with four kids and a full-time job outside the home I just can't plan meals like that. Plus, if Sean likes the way he is who am I to try and change him? By the way, thanks for the nice comments on my article ("Should you label your Autistic child?")!

Posted on 05/09/2007 at 9:05:00 AM

 
Yes indeed your doing an awesome job and putting in more attention, care and consideration towards your all children, than what many parents care to do. I would believe your approach is more healthy and better for your son, than having him 24/7 in some therapy. Life is not shaped like that, so he should not be put into a unreal situation because of his possible limitations. He needs to experience life as it is, very much so that he can learn to live it and be a part of it. In his case he and you might need to struggle more to do it, put still I believe it is very possible. You have a very good attitude and responsible attitude towards it, and I believe you'll do great, I guess for a parent especially mothers will sometimes worry about if they are enough and doing enough, even if they are indeed doing a pretty darn good job.

Posted on 05/07/2007 at 4:05:00 AM

 
What an awesome article. It's sounds to me like you're doing a great job.

Posted on 04/30/2007 at 5:04:00 PM

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