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My Experience with Pseudotumor Cerebri: When Headaches Aren't Simply Headaches

By Angelic, published Jul 05, 2007
Published Content: 12  Total Views: 0  Favorited By: 2 CPs
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Valentines Day - A day for love, relationships, flowers and candy. For me, being a practical mother of two, I did not want the more traditional gifts. All I wanted was a heart-felt "I love you" from my husband - and new glasses. My oldest son felt that my glasses needed vacuumed when he was two years old. So, I resorted to an older pair I had put back for a while. I also wore contacts, so this was not a major concern at the time. Six years later, February 2007, my contacts were gone and with a few unmentioned bills and expenses, I had not been able to make it to the eye doctor. But, this was just the beginning of my problems.

I had been having horrible headaches, not to mention pain and noise in my right ear. But, I thought my glasses were the cause of the headaches and I would take care of the assumed ear infection a little later. My (at least) ten year old glasses needed an upgrade. A quick call to the eye doctor landed an appointment for February 14, 2007. Perfect! What better Valentines gift could I have hoped for?

The morning of my appointment, I was awake at 4:00 AM. It seemed like I would never get back to sleep. I was actually excited about getting new glasses! Here I am, 26 years old, married with two young boys, and I felt like a kid on Christmas eve night. I got out of bed to use the restroom and when I flipped the light switch, the light did not come on. I yelled to my husband that the light bulb had blown, but he seemed more worried than I was annoyed. He told me that the light bulb had not blown and he could see the light coming on and going off each time I flipped the switch. This is when I traded my excitement for fear. I looked into the kitchen and I discovered that it, too, was dark. I was blind. The more frightened I got, the faster I flipped the bathroom light switch. Finally, I could see the light come on and go off. Still, I could not see any objects, only the difference of light and dark. I took a deep breath and flipped the switch a few more times. Slowly, I regained complete vision. I went back to bed to try to get some sleep before my appointment. I would be sure to tell the optometrist about this episode.

My Experience with Pseudotumor Cerebri: When Headaches Aren't Simply Headaches

Optic Nerve

Credit: http://www.revoptom.com

Copyright: http://www.revoptom.com

Comments
Comments 1 - 6 of 6
 
 
I didn't have to go back for anymore LP's. I was going back to the opthamologist once a month checking the pressure in my eyes and having them dilated so he could see things in there. As the swelling went down each month, I was taking down 250mgs of Diamox until I was no longer taking any and the swelling and inflammation were gone. The good thing is, I caught it early enough. Though, the doctor told me had I waited just 2 more months, I would have been blind, they were still able to catch it and treat it without anything more invasive than Diamox. I was, however, briefed on the shunt. I was praying it would never come to that!

Posted on 12/06/2007 at 1:12:00 PM

 
That is great to hear!! The only real stories I can find about IH are horror stories (best way to describe). How were they able to take you off the diamox? did you have to go back for more lps? sorry for the questions.. I'm so happy to have found a happy ending for someone whose had IH!

Posted on 12/03/2007 at 6:12:00 PM

 
Really sorry to hear about the spinal headache. I'm sure it's worse than the headaches that are associated with the pseudotumor. Things will get better! Just keep taking care of yourself. Update: I'm completely off the Diamox and haven't had but 2 [real] headaches in the last few months! And I think those were sinus headaches. =P

Posted on 11/29/2007 at 7:11:00 PM

 
Thank you for writing this, I was just diagnosed (well diagnosed 4 different times) this month. Those spinal headaches, by the way, the worst headache i've ever had in my life (it still hasn't gone comepletely away..i'm on day 6 with this now) :x

Posted on 11/27/2007 at 8:11:00 AM

 
Things are so much better now! Just a little update, I'm down to taking 250mgs a day! Not an hour, or 3 times a day. Just ONE pill a day! Things are definitely looking up. =)

Posted on 08/09/2007 at 10:08:00 AM

 
OMGoodness!!!!!!!!! I had no idea Amber...Glad to hear that things are better now. Hope they continue that way...Love ya Girl, Nicole

Posted on 07/27/2007 at 4:07:00 PM

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