Mal De Disembarquement Syndrome

I'm writing this article as I fight a rare form of dizziness called Mal de Disembarquement Syndrome. I have been living this way for the past 15 years. There are many people out there who have a form of dizziness that has yet to be diagnosed. It took 15 years to find out what was wrong
 with me due to the fact that many doctors have not heard of this rare medical condition. If you are a person that lives with dizziness, and no one can tell you why, you may find this article very interesting.

Mal de Disembarquement Syndrome is a french word for land sickness. This medical condition leaves you feeling dizzy after a cruise, an airplane flight, a train ride or a long car ride. You never really feel like you have your land legs back after you get off the moving boat, plane, or train. It is an extremely rare condition, so you need to think back on when your dizziness actually started. If it was right after you were traveling, there is a chance you may have this mysterious condition. You may have a sensation of floating all the time, a feeling of pressure in your head, or a faint feeling. You will probably have trouble closing your eyes and staying balanced, have a hard time picking something up off the floor without feeling wobbly or you may have a hard time just sitting still without a swirling feeling. This condition keeps you from doing a number of activities that don't usually bother other people. You feel uncomfortable standing up in front of people for fear of falling over, you have a hard time standing in lines because you feel faint, or you may choose to always stay home because the room is turning on you. I am here to tell you there is hope for your dizziness.

Related information
  • Do you have dizziness?
  • What is Mal de Disembarquement Syndrome
  • How can you get well again
 
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Angela, Yeah, fatigue is a huge side effect of dizziness. I was constantly tired and felt run down and miserable.

Posted on 01/22/2009 at 1:01:24 PM

I, too, just by accident saw the Mystery Diagnosis episode and it stopped me in my tracks. I have had this same mess since 1989. Up until October of 2008, it came and went; mostly after a day on the lake or in a boat or long car trips. I would lay in bed and say, "I feel like I'm rocking in a boat." Anyway... I got sick this past october with an ear/sinus infection, and my dizziness has been constant; especially when moving my head suddenly, bending over, laying down, standing up, or getting out of bed. I've fallen a couple of times, too, but nothing serious. Anyway... do you notice have a lot of fatigue?

Posted on 01/22/2009 at 12:01:48 PM

Katy, It is not in your head!! It is real. If you don't mind taking meds I highly suggest trying Klonopin. It is very effective. I take a half of a .5mg of the pill 3 times a day. It changed my life. Best of luck to you and I am glad you found my article enlightening!

Posted on 01/15/2009 at 2:01:21 PM

this is the most enlighting thing i have seen! my mother was watching mystery diagnosis last night and heard about this. i have had your exact symptoms for a long time and has gotten worse overtime it started after a plane ride when i was 11 years old and has gradually gotten worse. i have had every test done that can be for dizziness and was all normal everyone thought it was all in my head now u know its not. thank you for sharing your story.

Posted on 01/15/2009 at 1:01:45 PM

Hi, Thank you all for commenting on my article. As far as how I'm doing now...I quit flying 3 years ago. I just couldn't take day after day in the airport feeling terrible. I have been on Clonazapam for 3 years and it has changed my life. I feel like my old self again. I have flown since then on vacations and did worry about it coming back and it didn't. I do have to stay on the medication though. I have tried to stop taking it and within a week or so the room starts swirling on me. I don't want to stay at home feeling lousy, so I continue the medication and may have to take it the rest of my life. I don't mind that. I have my life back and I feel normal. The exercises never helped me and believe me, I did them faithfully for a year. Some people do find that they help, but it was not so in my case. I have an occasional feeling of dizziness that sweeps over me out of the blue but it is nothing like I had before....the constant feeling like I was on a boat. Thank you all

Posted on 08/27/2008 at 3:08:56 PM

I came down with MdDS after a cruise to the Galapagos, not a terribly severe case, but one enough to be uncomfortable. I am presently on a batch of medications from my Mexican doctor (who not only had heard of MdDS but had treated it before, since La Paz is on the Sea of Cortez and we have tankers, freighters, ferries, yachties, fishermen, guides, marine biologists--a big population of people with water-related jobs), In August I plan to fly to Portland OR for a couple of months and wonder if anyone has had relapse problems as a result of flying? i'd hate for it to get worse. What is the generic name for SERC? .

Posted on 07/12/2008 at 11:07:58 AM

Hey, I had never heard of mdds - until I couldn't get rid of severe dizziness & constant feeling of swirling movement after a flight a couple of years ago. My doctor prescribed "SERC" (a medication for treating Meniere's Disease)which got me back to normal after about 5-7 days. I am now experiencing this condition for the third time and am on my 2nd day of medication. Has anyone else tried SERC? It seems to work for me.

Posted on 10/16/2007 at 5:10:00 PM

hi, im not too sure whether i have this or not but im pretty sure i do. i get the sensations after being in the sea, on a boat and in lifts. i have just flown again and it has just started up again. its not all the time but if im concentrating its fine, but its is getting worrying and im not too sure what to do? i went to australia last year and it happened quite alot then but then stopped and comes back if ive been in a lift. any ideas??

Posted on 09/11/2007 at 12:09:00 PM

Hi Brigette, Thanks for sharing your story. I would like to encourage you to bring your positive recuperation experience to the support group listed above. There are over 550 people there who have MdDS in varying degrees of severity. They would love to hear that you were able to beat it an go on with life. By the way, I forwarded you link to a family member who is also a flight attendant. Thanks.

Posted on 07/13/2007 at 7:07:00 PM

I hope you will consider looking at the mdds support site. I think you will find this syndrome is not quite as rare as you may think. There are at least 300 of us that can relate to you.

Posted on 07/12/2007 at 1:07:00 PM

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