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Twitching Muscle Series: Part 5 - How This Muscle Twitching Syndrome Wreaks Havoc on the Mind

By Jillita Horton, published Jul 26, 2007
Published Content: 791  Total Views: 598,754  Favorited By: 33 CPs
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Imagine a doctor walking into the office where you've been waiting. He's not smiling. Clipboard in hand, he pulls up a stool and licks his lips, eyes lowered a moment. Then he makes eye contact and says, "I'm so sorry. The test came back positive. You have ALS - Lou Gehrig's disease. There is no cure, and life expectancy is usually two to five years after diagnosis."

How would you feel?

Well, this is pretty much the feeling experienced by many healthy people who suffer from benign fasciculation syndrome (muscle twitching). This harmless condition really messes with the mind, because a lot of people who have an annoying muscle twitch or twitches will invariably do an Internet search, not because they already fear the worst, but because they are merely seeking relief from bothersome twitching. They expect perhaps to find some dietary or supplement advice, or maybe something about a salve or cream that can be applied to the twitching area.

Instead, their search takes them to ALS sites. Muscle twitching is a symptom of amyotrophic lateral sclerosis, a muscle wasting, fatal disease caused by progressively degenerating nerve cells in the brain and spinal cord.

We all worry at some point or another in our life that we have a killer disease. Who hasn't worried they have cancer, after noticing a strange birthmark on the back of their leg, or having a persistent cough, stomach cramps, a missed period or strange pain in the knee? Who hasn't feared diabetes when they awaken one morning with tingling toes? Who hasn't feared a brain tumor from a headache, or an imminent heart attack from some chest discomfort?

But people with benign fasciculation syndrome (BFS) go way overboard. This is no laughing matter. The anxiety and fear of ALS is overwhelming. Many sufferers have NOT -- I repeat -- have NOT had any other hypochondriasis involving other medical conditions before. The ALS scare is their first. Victims can be any age, including 20s, even though ALS is extremely, extremely rare in this age group.

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Comments 1 - 6 of 6
 
 
It happens every couple months....Twitching behind my ear and all over my body...Its been going on for a year or two now....It dosent come all the time but after two months..It starts to twitch...and I think its caused by Stress.....Anxiety and maybe frustration.....I got that from the internet....Ehh i dunno....Should i tell the doctor?

Posted on 04/05/2008 at 12:04:26 PM

 
Love your article Jilita Horton, you hit it!!! I read your article at times before I go to sleep @ night when i've had twitching! It really helps to ease my mind. I think I can relate my twitching to a SSRI LEXAPRO! Anyhow KUDO's TO U!

Posted on 01/28/2008 at 10:01:57 PM

 
Worrysome Jenny, If you have been to neurologists, and you have been to neuro-opthamologists, chances are that you are probably ok. ALS is accompanied with muscle weakness, among other symptoms. A neurologist who conducts an electro-myelogram will have a very good idea whether there is neural atrophy. The fact that both neurologists did not recommend further assessment (MRIs with contrast, etc.) suggests that ALS is not your diagnosis. That is not to say that you are imagining your symptoms at all. There are many, many causes of twitching, many of which relate to calcium and magnesium imbalances among others. What seems interesting to me is the fact that it emerged in relationship with your pregnancy. There are a lot of complicated things going on in pregnancy, not the least of which is the fact that the fetus robs the mother's body of a number of trace elements during its development. You might be best served to talk to your OB-GYN to see if they have any helpful advice for thes

Posted on 01/08/2008 at 5:01:26 PM

 
you dont even understand what ive been going through for the past year. lets just say i got pregnant last may had beautiful baby girl in feb she passed away 12 days later. right after that ive had twitching all over in the same spots though and it scares me and it will twitch in the same spot for hours. ive been to 2 neurologist and have had 3 emgs negative i still dont believe it though cause the twitching is constant.im going to als clinic mon oct 1st. when i was pregnant with my daughter i new something was wrong the whole time and i had these huge eye floaters that dont go away and go on the tv screen and they are so huge havent left been to about 10 optho.nuero. i am so scared. thanks worrysome jenny

Posted on 09/23/2007 at 11:09:00 AM

 
hi, i posted a comment to you yest, but not sure if it delivered. i have been a sufferer of finger twitching for the past two years, and convinced myself many times i have als. my finger twitching returnsd after a quiet spell, and i went down the old familiar fear - terrified would be a better description - route. im so glad i found your article. finger twitching seemed to be better after read that. i would be willingly interviewed. email is dougal1958@hotmail.co.uk

Posted on 09/14/2007 at 4:09:00 AM

 
Hi, this is Jillita. I would like to write a very in-depth, comprehensive article on BFS/muscle twitching and its accompanying fear. I see that this article is getting a lot of hits. If you'd like to share your experiences and be interviewed for an article, please leave me your e-mail address. We can correspond via e-mail. Thank you.

Posted on 08/31/2007 at 7:08:00 PM

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