Identifying and Living with Arachnoiditis

Arachnoiditis Has Nothing to Do with Spiders

By Patricia Dittmer, published Jul 12, 2006
Published Content: 11  Total Views: 5,231  Favorited By: 0 CPs
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What is that ? Arachnoiditis is not a fondness for spiders. It is a debilitating disease for those several thousand in the world who have been diagnosed with it. Many times it goes undetected because most doctors are unfamiliar with it. It is not a life threatening disease so is not a widely studied one. Arachnoiditis is inflammation of the arachnoid or middle layer of the spinal cord. The name comes from the spider web of scarring from this inflammation. According to Dr. Sarah Smith the inflammation causes constant irritation, scarring and binding of the nerve roots and blood vessels. It is characterized by severe stinging and burning pain and neurological problems. It also causes tingling, numbness, or weakness in the legs, feeling like insects are crawling on the skin or water trickling down the leg, severe shooting pains, muscle cramps, spasms and uncontrollable twitching, bladder, bowel and/ or sexual dysfunction.

If the disease progresses, symptoms may become more severe or even permanent. The disease can become very debilitating as the pain is constant and intractable. Most people who have arachnoiditis are unable to work which in most cases causes isolation that leads to depression. There are three main causes of this disease. The first is trauma which is surgically induced by way of surgeries which invade the spinal cord or trauma to the spine. Others are multiple lumber punctures such as epidurals, advanced spinal stenosis or chronic degenerative disc disease. The second is chemically induced by way of mylograms which use various chemicals that are injected into the spinal cord for contrast for tests such as CT or MRI scans. The third cause is infection induced. This can be caused by infections such as viral and fungal meningitis or tuberculosis.

There is no cure for arachnoiditis. Treatments are given to help with pain relief and are similar to other chronic pain treatments.

Takeaways
  • Arachnoiditis is a debilitating disease that causes chronic pain.
  • Arachnoiditis is inflammation of the middle layer of the spinal cord.
  • Arachnoiditis patients have to reinvent their lives and dreams for the future.
Did You Know?
There is no cure for Arachnoiditis. The only treatment is the same as for chronic pain.
Comments
Showing Comments 1 - 3 of 3
 
 
Patricia, You've done a Beautiful job in describing our disease to others, Thank you! I love that you stated near that end of the article that "Our lives as we knew them are over." Good Lord is THAT ever true. But look... here you are blessing people like me and others because you refuse to accept all the crap this disease has to give you. You go Girl. I wish you all the best! Radene Marie - Cook

Posted on 11/07/2006 at 2:11:00 PM

 
THANK YOU FOR HELPING TO SPREAD THE WORD ABOUT ARACHNOIDITIS. AS WE PROGRESS, WE ARE LISTED AS "I.P.D.", INTRACTABLE PAIN DISEASE. THIS DIAGNOSIS CAN BE SO BENEFICIAL TO RECEIVING ADEQUATE PAIN TREATMENT. FROM YOUR FELLOW ARACH_FRIENDS MEMBER, JIM

Posted on 07/13/2006 at 1:07:00 PM

 
I noticed that you take Neurontin. I also suffer from arachnoiditis, and I used to take Neurontin. I took it for several years until the state medicaid decided to stop paying for it. After I went into extreme financial distress due to the cost of the medication, I was forced to wean myself off of it. Not only did I find that my pain remained the same, but I lost 50 of the 100 pounds that I had gained since starting the drug. I have since heard that many people gain a great deal of weight while taking Neurontin. I don't know how this medication has effected you, but I thought you might be interested in this little bit of information. Sincerely, emma

Posted on 07/13/2006 at 10:07:00 AM

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