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How I was Treated with Fibromyalgia

And How I Learned to Manage it Without Medication

By Erin Bartuska, published Jul 25, 2006
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When I was 17, a senior in high school, I suddenly became stricken with severe pain in my wrists and ankles, as well as full body aches. My mother, a nurse practitioner, couldn't find any reason for the pain and rushed me to the ER. An embarrassing visit with a disinterested ER doctor later (clearly, I wasn't suffering from an STD!), we were none the wiser.

Fibromyalgia ("muscle pain") is a neurological/muscular condition which the medical community is only beginning to understand. Muscle pain, fatigue, and a sort of "mental fog" are common symptoms. Sleep deprivation and stress can be both a trigger and a result of fibromyalgia, as I soon found out. There are many treatment options open, including acupuncture, medication (painkillers, muscle relaxers, SSRIs) and massage, but every case is unique. While most people suffering from fibromyalgia experience ongoing pain, most also cycle through flares of increased pain and periods of less discomfort.

In the years before I became severely ill, I had a case history of frequent ear, nose, and throat illness with long recovery times. As a high schooler, I also had an erratic schedule brought on by a demanding academic curriculum that contributed to perpetual sleep deprivation. I exercised frequently, but didn't eat very healthfully.

After the initial consultation with the ER doctor, my mom took me to my regular doctor the same pediatrician I'd been seeing since I was a baby. She tested for thyroid problems and diminished iron levels, but all my tests came back negative. My doctor and my mother were both baffled, and agreed that it didn't look like arthritis, as my joints weren't swollen or very warm. So my doctor gave me a referral for a local rheumatologist and agreed to write a note for when I needed to miss school in the meantime. (At that point, I was having a hard time climbing stairs and an even worse time taking notes in class.)

How I was Treated with Fibromyalgia

Happy and healthy with my brother, two years later.

Credit: Deborah Williams

Copyright: Erin Bartuska

Takeaways
  • Fibromyalgia is a diagnosis of exclusion: other disorders must be ruled out first.
  • In many cases, but not all, fibromyalgia can be managed with diet and exercise.
  • Different treatments and pain management plans work for different people. There is no cure.
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I'm in a flare up of pain right now that is unrelenting and almost not bearable. I've had fibromyalgia for about 20 years. This is the worst I've ever felt and has lasted the longest of any flare I've ever had. I don't know how anyone can live like this without pain medication. Even taking ultram doesn't make it too much easier right now. I'm really depressed. My brain is like a big bunch of mush and I'm feeling very sorry for myself. I am married and have been for almost 40 years. He does understand and he does help but sometimes he gets frustrated with me and tries to hide the frustration, which in turn stresses me out. Right now I'm mad at the world. Has anyone ever had a flareup that has lasted more than two months? Is it the cold weather? I have to go to my granddaughter's 12 birthday party tonight and shopping for a gift today. How in God's name am I going to accomplish this? I feel cheated by the life I have to lead. As I write this, I feel guilty know there a

Posted on 01/19/2008 at 10:01:43 AM

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