My IBD Survivor Story: How I Coped as a Twenty-Something Woman

sorry -- left me after my diagnosis; I sure know how to pick 'em, don't I?! You're lucky to have a good guy at your side; I hope you have a long and happy marriage)

I am so sorry you have been through this; my God, your survival is practically a miracle. I was diagnosed when I was 23 or 24 (so long ago, I can hardly remember!), and it wasn't severe then. I was put on some medications, and started making diet changes. I never lost weight, until last December (followed by a surgery to remove a blockage, not severe though); generally I gain, but I think it may be the steroids. I know just how you felt with the puffed up cheeks; I wish more people would look at your photos, to understand what we go through. I can't imagine having to deal with this in high school, where no one "gets" the disease (actually few people get it anyway, except those who have it, maybe their families, and their doctors). If you can join a support group, it might help; the only problem is that then it focuses on the illness, and if you're like me, you'd rather think about other things, and get on with your life. Good luck! I hope the worst is over for you! (My husband left

I cannot believe there are no comments on this. What an incredible struggle you have survived! Few would have the courage to be this open about it -- I'm only sorry that you didn't pay more attention to your health the entire time, although I think I understand your reasons. No one wants to be "the sick one." I wish I'd read this article first. Congratulations to you for making it through all that you've been through; do continue to take care of yourself so that you can continue to enjoy your life -- hopefully hospital-free.