Find » Health & Wellness » SLE-lupus and Summer Heat Can Creat...

SLE-lupus and Summer Heat Can Create Some Real Problems

By Candida Bohnne-Eittreim, published Aug 02, 2006
Published Content: 109  Total Views: 93,716  Favorited By: 23 CPs
Embed:  
Rating: 3.4 of 5
SLE or lupus and other autoimmune disorders often have higher incidences of flare ups during certain seasons, and for different reasons. Because of this, summer carries a high risk of danger to lupus and mixed connective tissue disorder patients in particular. Both extreme temperatures and sun exposure itself cause an already unstable body system to really go off kilter.

Because these disorders can impact the heart, kidneys and lungs, it is extemely important to try and prevent further damage to our bodies. Dehydration poses a much greater threat to us, so it's important to remember to drink 6-8 glasses of water a day, and add other beverages such as fresh juice or refreshing iced teas.

Never go outdoors during the peak heat hours between 12 and 4 PM. Wear a big hat to shade your face, and an SPF sunscreen of at least 40. Learn to heed the signs of impending high blood pressure or kidney problems. If you begin feeling a tightness in your head, accompanied by a pounding pulse and often spots before your eyes, lie down immediately and call your physician.

If you stop urinating, or only are producing scanty amounts of urine, accompanied by intense headache, have someone drive you to the ER immediately. Do NOT try driving yourself, you may black out. As an example, I've been having periods of feeling as if I am going to pass out, something I've never had before. My husband drove me to the doctor who discovered yesterday my blood pressure is at a very dangerous 170/150. Needless to say it frightened us all out of our wits. When we asked why, she explained the combination of high heat, dehydration and constant pain from the still unhealed ankle breaks had cause my lupus to go into "crisis' flare.

She, when asked for tips I could share with others, pointed out a few less obvious contributing factors. One is the light/heat from windows unless covered and draped. The damage from sun coming in an uncovered window is nearly twice as bad as being outoors itself. The same applies to flourescent lights. For some patients the UV light causes tremendous irritation for patients with SLE and Sjogrens.

SLE-lupus and Summer Heat Can Create Some Real Problems

My Life Without Lupus Bracelet

Credit: Lupus Foundation

Copyright: Lupus Foundation

Takeaways
  • Never go outdoors during the peak heat hours between 12 and 4 PM.
  • Learn to heed the signs of impending high blood pressure or kidney problems
  • Swimming is an excellent way to ease fatigue and joint pains
Did You Know?
Diuretics can be dangerous during periods of intense heat. The loss of water/electrolytes caused by heavy pespiration, coupled with the medication can cause fatal arrythmias.
Resources
Comments
Showing Comments 1 - 3 of 3
 
 
I'm now forced to look at what is eating at me literly, diagnosed when son turned 2. I'm going on 13 years since diagnosed. I'm fat never heavy before. I am or was always on the go now mostly bedridden hopefuly this will change since I'm forced to look at what I have and change for it so I'm not bedridden all the time and constantly vicious cycle of harming myself because I was too stuborn to face my diagnosis and live like I don't but if I want to continue hurt and bedridden I need to change my friends My boyfrien of all 3 years and another before him have acted out what i've done from an attack the look on their face thrown in my face as if I faked it killed me inside even more. an athletic super mom pta meetings all gone now just me my cat and my bed and loseing another boyfriend so I better stop being stubborn and learn about me now to love me take care of me and now I have to go typing is killing my shoulder and neck and hands ahhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhh.

Posted on 02/24/2008 at 1:02:27 AM

 
Luciunda, you're welcome! I know MS is autoimmune and is very similar in some respects to SLE. Try adding just a drop of lemon juice to your water when carrying it out with you. I don't know why but it really helps that sometimes flat taste. Thank you for commenting. If it would help e-mail me. I have a group that offers support for anyone suffering with autoimmune diseases. Just let me know, I'll send you the link.

Posted on 08/05/2006 at 3:08:00 PM

 
Candida-- Extreme heat is bad for us MS sufferers too. I've found that I have to take my water bottle everywhere, even to the grocery store and post office. Thanks for your article, though the disease is different, many of the effects are similar and the advice is sage!

Posted on 08/05/2006 at 2:08:00 PM

Type in Your Comments Below - (1000 characters left)
Your name:

Submit your own content on this or any topic. Get started »
Showing Comments 1 - 3 of 3
 
Most Commented On