SLE-lupus and Summer Heat Can Create Some Real Problems
By Candida Bohnne-Eittreim, published Aug 02, 2006
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SLE or lupus and other autoimmune disorders often have higher incidences of flare ups during certain seasons, and for different reasons. Because of this, summer carries a high risk of danger to lupus and mixed connective tissue disorder patients in particular. Both extreme temperatures and sun exposure itself cause an already unstable body system to really go off kilter.Because these disorders can impact the heart, kidneys and lungs, it is extemely important to try and prevent further damage to our bodies. Dehydration poses a much greater threat to us, so it's important to remember to drink 6-8 glasses of water a day, and add other beverages such as fresh juice or refreshing iced teas.
Never go outdoors during the peak heat hours between 12 and 4 PM. Wear a big hat to shade your face, and an SPF sunscreen of at least 40. Learn to heed the signs of impending high blood pressure or kidney problems. If you begin feeling a tightness in your head, accompanied by a pounding pulse and often spots before your eyes, lie down immediately and call your physician.
If you stop urinating, or only are producing scanty amounts of urine, accompanied by intense headache, have someone drive you to the ER immediately. Do NOT try driving yourself, you may black out. As an example, I've been having periods of feeling as if I am going to pass out, something I've never had before. My husband drove me to the doctor who discovered yesterday my blood pressure is at a very dangerous 170/150. Needless to say it frightened us all out of our wits. When we asked why, she explained the combination of high heat, dehydration and constant pain from the still unhealed ankle breaks had cause my lupus to go into "crisis' flare.
She, when asked for tips I could share with others, pointed out a few less obvious contributing factors. One is the light/heat from windows unless covered and draped. The damage from sun coming in an uncovered window is nearly twice as bad as being outoors itself. The same applies to flourescent lights. For some patients the UV light causes tremendous irritation for patients with SLE and Sjogrens.
SLE-lupus and Summer Heat Can Create Some Real Problems
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Takeaways
- Never go outdoors during the peak heat hours between 12 and 4 PM.
- Learn to heed the signs of impending high blood pressure or kidney problems
- Swimming is an excellent way to ease fatigue and joint pains
Did You Know?
Diuretics can be dangerous during periods of intense heat. The loss of water/electrolytes caused by heavy pespiration, coupled with the medication can cause fatal arrythmias.
Resources
- Get In The Loop With Lupus. By a bracelet to support lupus research here. www.https://www.2p9.com/Lupus/SLE/0105OrangeBrace Lab Tests Online offers a great guide to the clinical signs accompanying SLE www.labtestsonline.org/understanding/conditio Lupus Foundation Of America offers patients and their families loads of help and vital information on this crippling autoimmune disorder. www.lupus.org/index.html
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uncomfortable
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Posted on 02/24/2008 at 1:02:27 AM
Candida Bohnne-Eittreim
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Posted on 08/05/2006 at 3:08:00 PM
Lucinda
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Posted on 08/05/2006 at 2:08:00 PM