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Living with Fibromyalgia from a Husband's Perspective: Part 2

A Follow-up to the First Installment in My Struggle with My Wife Having Fibromyalgia

By df12364, published Jan 08, 2008
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In the Middle

We are in the middle of what the doctors say is the usual time span for Fibromyalgia to be at it's worst. I don't necessarily understand that what they are saying is the truth, but they must be right, right? Wrong. Most doctors don't even have a clue as to what this ailment is all about. And, unless they actually come down with it, they probably never will.

No evidence of pain

As was stated in Part 1 of this article, because no one can actually see a picture of the cause of the pain, either thru x-rays or MRI's, there really can't be any real problem. It must be the alcohol. Drinking 5 drinks a day to ease the pain is the cause for all the problems. This may be true if the drinks were triple shots of whiskey. 5 beers a day does not constitute the type of pain and shaking that Fibromyalgia brings on. Unless there is concrete proof of pain, there can't be pain.

Mood swings

Everyone knows someone that has or has had mood swings. Usually it is due to a hormonal imbalance. With Fibromyalgia, mood swings are very prolific, and get worse with time. The pain has a lot to do with how extreme the swings are. What wouldn't have even raised an eyebrow before gets tears or yelling. It makes it very difficult to plan on even watching anything on TV that might get an adverse reaction. Something as silly as a character getting hurt on a soap opera will trigger this swing. One must use careful consideration all of the time.

Memory loss

You can probably remember what you did in the 5th grade, but may have trouble remembering what you had for breakfast-and it's only lunchtime. Imagine that 20 times worse. It's almost as if dementia is setting in, or even Alzheimer's. But it is the Fibromyalgia. We talk about the same things, almost every week. My mother has been diagnosed with Alzheimer's, and I know what that is like. My wife has exhibited similar symptoms. Not to the point of forgetting who we are, but just a lot of repetition. You have to go with the flow, and not scold them for any repeating of stories or events.

Light at the end of the tunnel

Comments
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I have this stupid disorder running rampant through my body as well. Mine has gone in 4 or 5 month spans. Things will be bad, ups and downs like you said, but the ups aren't very high....and then I do have months where I can actually forget I have fibromyalgia. Mine has this jeckyll/Hyde presentation. The worst times its unbearable to do anything:sit, stand, liedown. There was a time or two I was lying on the floor crying cause it hurt where my body was touching the floor. It hurt where it was touching the couch. My ex tried to lie with me and touch me to give me some comfort emotionally and it hurt when he touched me. Sometimes I feel trapped in here, watching what my body is making me do and I'm screaming NO! I'm still here! I wish I could walk or sit or lift things with no pain. I wish my kids could run up to me and hug me without making me wince. It isn't fair. On the other hand, I DO have good days. It isn't fatal. And I have people who love me very much. So

Posted on 04/07/2008 at 10:04:17 AM

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