Coping with Chronic Illness: Things I Have Learned on My Quest for a More Peaceful Life

Coping with a chronic illness is a challenge for the entire family. While it affects each member of the family differently, no one is spared. Each family member has different needs. Needs, that if not addressed, can throw the entire family into chaos. Using active coping strategies can decrease stress and improve the psychological health of every member of the household. As a parent of two children with Shwachman-Diamond Syndrome (SDS), I have learned that there are many things that I can do to help relieve stress and help the entire family cope. Limiting the effect of the stress from medical appointments and procedures will enhance the well-being of each member of the family.

Parents must take care of themselves.

In order to be effective parents, we must first be able to understand and cope with the diagnosis ourselves. Before we can help our children, we must be able to help ourselves. The outlets we find and the tools we use are essential to living a full life amid the daily medical routines. Once you have taken care of your child's medical needs and cared for your other children, you must also take care of yourself. I cannot emphasize this point enough. This includes taking time to relax or doing something you enjoy.