Meniere's Disease - My Story

I was diagnosed with Meniere's disease last year when i was 17. However, i am lucky enough not to suffer serious vertigo attack. The only thing that affect me now, nausea and sometimes lost of appetite. Lots of exercise in correct way can help to lessen the vertigo attack.

I have had vertisgo for the past 27 years. Went to bed one night when I was 18 with a HORRIBLE ringing in my ear, then woke up the next morning and fell into the wall! After, the attacks came maybe once or twice a year & always upon waking or in the middle of the night. - very manageable. But now for the past 3 months, I have had an attack every 5-6 weeks and they always occur in the middle of the day. Now I am experiencing anxiety as I am afraid to go out for fear of an attack. Trying to avoid alcohol and other triggers but so far, not much improvement.

I have Meniere's too. It is extremely difficult to live with.

Sorry My email is Miguel9090@go.com

This is what I feel and It has been going on for over a year. I feel like my upper body is moving in a circular motion and sometimes when walking I feel like there is a carpet under my feet and someone is pulling it away. It gets worst if standing still. I have to lay down to feel better, but now I feel nauseated (sorry about the spelling). I have had blood work done and came back normal. I thought It was my vision but is not. The top of my head feels numb or just weird. Also my ears sometimes feels full of mocus. Please email me, I have been reading your comments and it seems it could be the same condition.

WOW! Ive just been diagnosed with MD after going thru all the tests. I was just told my hearing loss in left ear is permanent. I was sick for an entire month and just got back to work this week. My head still feels heavy and like i'm in a constant fog. Its hard to keep my focus. Its very debilitating and hopefully I dont get another attack. You cant even explain to someone that doesnt have MD what a horrible feeling the spinning is. Im now interested in finding out what treatments others are trying and what helps. thanks.

On the 13th October I had a hospital appointment with ENT, had series (5hrs) of balance and motion tests. The consultant has asked me to take MRI Scan to eliminate any other causes also blood tests. However, I am bit worried that they may misdiagnosis me as I used to have migraine as well, but I know the difference between two pains. Migraine pain is sharp and aggressive whereas, meniere's is dull but heavy lingering pain on my top of the head. I hope they will make the right diagnosis. I have been taking Betahistine 8mg 3 times a day given by GP is helping me to manage but it hasn't been completely gone though. I know Meniere's Disease can not be cure but I hope I can manage and have a possible normal life and find a good job, I had been studying to provide for my two sons, now looks rather gloomy.

In 1991, after a severe worries and fear, I developed stressed and then one day I felt heaviness on my head and I had to lie down and suddenly after hour or so I feel very sick and couldn't open my eyes, my vision was distorted vertically (world around me was like a broken tv). I couldn't open my eyes, couldn't see lights either. I was bedbound for 15 days and suddenly vertigo gone milder but my both ears start to ring and few days later both ears stopped ringing but permananlty lost my left ear hearing. I thought, its all over until now in April 2008 I felt severe dizziness and but now on then had fullness in my left ear and during that used to feel balooned head but didn't take noticed of it. But now, it has affected my daily life, I can't go out, my head is heavy all the time, feel dizzy and sometimes feel sick but not quite often but have dizziness low-modtrate to severe. I also, have vertigo during my sleep and it was very frightening experience. On the 13th October I had a

Wow! I knew something was going on, but what. I had a severe dizzy spell about Two years ago that totally freaked me out. I kept falling down, could not dress myself, had nausea and vomiting, it was the worse feeling. It started in the middle of the night with the spinning in my sleep. You would think that if your eyes were closed there would be no spinning, WRONG! I think it's worse with my eyes closed. I was taken to ED by my husband. I kept thinking how happy I was that he was home with me and had not left for work yet. I am sure I had a panick attack because I had no idea what was happening to me. Since then I continue to have light headedness, I have not so often ringing in my ears, I have a strange feeling in my head which I really hate, I have mood swings, and fatigue. One thing I have noticed is to make sure I consume enough water. I have reduced the intake of caffeine and this seems to help. I now what to do to prevent the attacks or at least minimize them. Thank

Hi, I want to tell you you are not alone. I too have Meniere's and fall sometimes. Where I get frustrated is trying to excerise. It triggers the vertigo. I have to take medicine before I can even think of working out, so unfortuately I don't do it as I should. I also understand about what do you tell people. I learned if it is a disability they can't see they don't get it. You want to talk about it, not complain and talking about it to others feels like complaining. Good luck. My heart goes out to you. If you can't do something, try to smile about the fact that you could once do it at all. Some people could never do some of those things, like riding a bike. That's how I get through it. God bless all of you who wrote in and experience this aspect of life. My prayers go out to you. Mary Beth